www.StemCellsChina.com (specific information on Blake's treatment in China can be found here...)

University of Missouri Research, Dr. Katz – "The goals of research conducted in the laboratory of Professor Katz are to develop a better understanding of the mechanisms that underlie neurodegenerative disorders and to develop therapies...The particular focus of the research is on... hereditary ceroid-lipofuscinosis (CLN), also known as Batten disease."

Batten Disease Support and Research Association (BDSRA)
 
National Institute of Neurological Disorders & Stroke (NINDS)
 
The Davidson Laboratory – "Our research on childhood onset neurodegenerative diseases is focused on experiments to better understand the biochemistry and cell biology of proteins deficient in these disorders, and to develop gene small molecule based medicines for therapy...."
 
Hailey and Carter's Dream – two children finding hope against a brutal childhood disease...

Mary Payton's Miracle -- "The current research in the U.S. has shown promise in halting the progression of the disease, but there is no approved treatment available in the U.S. Once the function is lost, it cannot be regained. We are racing against time. It is essential that we get Mary Payton the help she needs as soon as we possibly can."

Taylor's Tale – "Taylor's dreams are simple and pure, yet she stands to lose all of them. Taylor has INFANTILE NCL, the most rapidly progressing form of Batten Disease..."

Nathans Battle – "...It breaks our hearts to see this wonderful boy struggle so much. In appearance he looks very normal and others cannot understand why he struggles. At this point we are desperately searching for a treatment for his conditions. We are willing to do anything or go anywhere to help our son."
 
Drews Hope – "The neurologist diagnosed him (falsely) with childhood epilepsy with the hope that he would out grow it. We knew that something else was going on and began our search for a diagnosis... "
 
Jordan Jay Trust – "The Trust has been established to raise funds for research into the treatment of Late Infantile Battens – also known as CLN2. The development of therapies will directly benefit children that are diagnosed with this devastating disease throughout the world and be a potential cure for around another 40 genetic disorders, saving the lives of thousands of children."

Sasha's Story – "For the first three years and three months of her life Sacha developed at the same rate as any other three year old. She could walk, sing, speak, count, jump, splash in the bath... All of that changed after one night in December 2003 when Sacha woke up having a convulsion."

Curtis Anthony's Hope – "Curtis was a normally developing and very happy little boy. He achieved all his milestones on time if not early. Then he started having seizures when he was 3 but we thought it was just a typical case of epilepsy..."

Help Hayden